Received an email 2 days ago inviting me to use Patients know best so today I logged in and found a message for today for an appointment at 11am ,30 odd miles away , 4 months of waiting ( it was 11.... Se mere
Selvom vi ikke verificerer specifikke påstande, fordi anmeldernes meninger er deres egne, kan vi godt betegne anmeldelser som "Verificerede", når vi kan bekræfte, at der har fundet en forretningsinteraktion sted. Læs mere
Af hensyn til platformsintegriteten scannes alle anmeldelser på vores platform – verificerede eller ej – af vores automatiserede software døgnet rundt. Denne teknologi er designet til at identificere og fjerne indhold, der overtræder vores retningslinjer, herunder anmeldelser, som ikke er baseret på en reel oplevelse. Vi er klar over, at vi måske ikke fanger alle problemer, og du er velkommen til at gøre os opmærksom på det, hvis vi har overset noget. Læs mere
Se, hvad kunderne siger
I am very impressed with the time and care that Tara put into solving my log in problems. It took at least five attempts to finally solve the main problem, with lots of patience on her part and I can... Se mere
Wasn’t able to sign into PKB for some reason. Took a ticket and heard back with advice on what to do next within a few hours. I was still unable to log in and gave up. But, PKB didn’t give up. They... Se mere
A serious disease, stressed to the max that does not consider the patient’s mental health. The human condition is not supposed to communicate with apps, we are not supposed to live this way. How many... Se mere
Virksomhedsoplysninger
Oplysningerne kommer fra forskellige eksterne kilder
Patients Know Best (PKB) is Europe’s largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the world’s first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patient’s own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patient’s regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with England’s national health platform - the NHS App. This extends the NHS App’s current features and sharing of GP data, to allow patients to access PKB’s full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.
Kontaktoplysninger
Cowley Road, CB4 0WS, Cambridge, Storbritannien
- help@patientsknowbest.com
- www.patientsknowbest.com
3,3
Middel
625 anmeldelser
Ingen nylige anmeldelsesinvitationer
Denne virksomhed har ikke inviteret kunder til at skrive anmeldelser for nylig, så anmeldelserne er muligvis ikke repræsentative
Har besvaret 60 % af deres negative anmeldelser
Svarer typisk inden for 2 uger
Sådan bruger denne virksomhed Trustpilot
Se, hvordan deres anmeldelser og bedømmelser indsamles, vurderes og modereres.
I find the srevice first class and very…
I find the srevice first class and very usefull as it keeps myself and wife up to dates with all our many appoitments.
I highly recomend them.
4. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Thank you for your kind words, Malcolm! 😊 We're thrilled to hear that our service has helped you both to manage your appointments. If you ever have any questions or need assistance, we're here to help!
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
I gave up on Patients Know Best
I tried to contact Maidstone Trust by Internet to cancel appt. Found it impossible to do this. Very frustrating and time wasting. I gave up
30. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Bill,
I'm sorry to hear about your frustrating experience.
PKB appointment management is available via the NHS App for Maidstone and many other participating NHS Trusts. This feature allows you to securely message the appointments team to reschedule or cancel your appointment.
We have a step-by-step guide here: https://wiki.patientsknowbest.com/space/MAN/3624075361/NHS+App+%26+NHS+Login#Accessing-PKB-appointments
I hope this helps, but if you continue to have trouble, please don't hesitate to contact us at help@patientsknowbest.com.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Must be about the worst user experience…
Must be about the worst user experience I've had in years. I occasionally receive notifications that something has happened on my account and to click the link......which just goes to my profile page, no more info on what's been changed, nothing new in notifications...what a waste of space.
2. august 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Sorry to hear this, Graham. We send email notifications about record updates, detailing type of change—such as 'added test results' or 'updated your profile'.
Profile updates are changes in your demographic information (e.g., address), not clinical data. These emails are limited to once per day, even if multiple updates are made. You can disable them by adjusting your notification preferences here if you wish: https://wiki.patientsknowbest.com/space/MAN/3624665101/Email+notifications#How-can-I-change-my-email-notification-preferences.
If profile changes are occurring frequently, it suggests an address conflict between your NHS Trusts, causing updates to overwrite each other. Please contact your hospitals to ensure they have the correct information on file. If you need further help, feel free to reach out to our support team.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Absolutely appalling.
Absolutely appalling.
Given up trying to order repeat prescriptions as the website says it will send a log in code by sms. By the time the sms arrives the link has timed out. Also when you try to log in to the site, you get a warning stating that the site is not secure and you cannot access it.
Total waste of time the NHS portal worked perfectly no need for this adfitional layer of no doubt very costly admin.
1. august 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Sorry to hear this, Alan.
There seems to be some confusion here as PKB doesn't send SMS login codes. You may be referring to NHS login. You can log into PKB using your registered email and PKB password. Access via your NHS login account is optional, and any issues with their process should be directed to NHS login's support team.
Regarding the security warning, PKB is fully secure. Our login page will display a warning if you are using an outdated browser or cookies are disabled. However this wouldn't prevent you from logging in or compromise security. Is it possible you've confused us with another software?
Please reach out to us at 📧: help@patientsknowbest.com, and we'd be happy to help.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Misleading and Inaccurate
Most test and scan results are missing. I have diagnoses, but these are not mentioned. If practitioners are relying on information here this could result in no or inappropriate treatment. This is another example of wasted NHS resources and should be shut down without further delay.
26. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Dear Geraldine,
Thanks for reaching out. We completely understand your frustration. At PKB, we wish for every patient to access a personal health record that is complete, real-time, and accurate.
With our platform, healthcare providers can share data with patients directly from their hospital record system. Whilst some have made all data types available to their patients, others are taking a more phased approach.
Your healthcare providers decide what data is shared with you and when. Rest assured that the moment new information is available in your record, we notify you by email.
We'd really like to help further. Please contact our support team at 📧 help@patientsknowbest.com. We'll advise on your NHS trust's plans for data sharing, and/or put you in touch with the local PKB admin team at your hospital.
We appreciate your feedback and are here to help. Thank you for your patience and understanding.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Do not use
Would highly recommend patients not to use this platform.
My name is incorrect and so was my address - completely different to my systm1/GP record.
I've missed a very important appointment and been discharged due to this error!
I noticed my name and address were incorrect when logging in to the app and tried to contact using the details but the number doesn't work.
On finding out I have been discharged I logged in again and there's no record of the appointment on there so I've no idea of it's purpose...
Not even sure how I can opt out!
25. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Jen,
Thank you for your feedback. We're sorry to hear about your experience and want to support you in resolving this issue.
Personal data such as your name and address is fed directly into your PKB record from your healthcare provider's system. Your demographic profile is continuously kept up to date based on the data held in your hospital record. If there's a discrepancy, it's important to contact your hospital to correct their records. This will ensure that the correct information is accurately reflected in PKB.
At PKB, we wish for every patient to have access to a personal health record that is complete, real-time, and accurate. Without visibility of your data, mistakes in your hospital record can go unnoticed. We aim to provide transparency and empower you to take control of your health.
Please reach out to our support team at 📧: help@patientsknowbest.com. We understand how frustrating this is, but we are here to support you in addressing this with your hospital and ensuring your record is up to date.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Saving and printing pdfs
I have received emails from pkb , some with enclosed pdfs; These have been impossible to save or print.
Right-click-save-as does not work - it doesn't give me the option.
I pointed this out days ago. The problem remains.
17. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Xavier,
Sorry to hear about your difficulties. We provided guidance via your support ticket on July 17th, detailing how to download the files without opening them, and included a screenshot for reference.
PKB displays attachments inline with options to open full screen or download. If viewing isn't possible, a download link will be available. For more information, please see our user manual. https://wiki.patientsknowbest.com/space/MAN/3625091092/Attachments
If you're still having trouble, please do get in touch with our support team, and we'd be happy to assist you further.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Trying to registerwith PKB via email
Trying to registerwith PKB via email. But you never send the link.
18. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Alison,
I'm sorry to hear that you've had trouble registering. If you are based in England, you can use NHS login to register on our registration page: https://patientsknowbest.com/register/.
If you are unable to use this, please feel free to email our Support team at help@patientsknowbest.com, and they will be delighted to help get you registered.
Needed to check if genuine site & email.
Received an email from this site with no idea whether it was genuine or fake. I had to google the site to check it out. Yes, it looks genuine, but I consider this very poor practice to receive something out of the blue when there are so many scams around. It's a waste of time for a start but even when I looked to see if genuine I looked at the Trust pilot reviews & it seems it's to do with hospitals, not GP, so is almost useless overall. I might register but don't know if it's worth the time. I suppose I was sent the email as I was recently referred to a service and will be on a waiting list, but I should have had official notice first so I knew it was genuine.
19/7/24 Thanks for the reply. Yes, there was a link, but I don't click on links from an unknown source! Thanks anyway.
15. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Fran, we are sorry for any confusion that's been caused by the email invitation that you have received from your NHS trust. We certainly don't want to cause any worry to patients.
We do expect NHS Trusts to communicate with their patients about the service before mass registrations take place, however it seems like your invitation was triggered by your recent hospital activity. Please visit your NHS Trust's PKB webpages (the link may have been provided within your invitation) as this should provide you with reassurance about how your hospital are using PKB and how this can benefit you. Alternatively please feel free to email our Support team at help@patientsknowbest.com
I was sent an e:Mail stating your…
I was sent an e:Mail stating your record has been updated, when I looked into it the last record was from 8th April 2024 and not recent. Who sent the e:Mail was not known and I do not know how I can find out who did. Had a very quick reply back from the people who look after the software and of cause they could not help
6. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Dear Peter,
Thank you for your review. I'm glad to hear you received a prompt reply from our support team, but sorry the issue remains unresolved.
When your record is updated, the email notification you receive from PKB should include the source and the nature of the update, for example:
"XYZ NHS Trust has updated your record: updated your profile"
"XYZ NHS Trust has updated your record: added test results"
Clinical updates are referenced in the email i.e appointment, document, test result. I suspect your email states "updated your profile," which refers to your demographic profile. These updates can sometimes be very minor, such as an extra line in your address. If you are receiving these updates frequently, there might be a discrepancy in the data held by your hospital(s) and GP. Our support team will follow up with you and help get to the bottom of this.
Apologies for the inconvenience caused, we appreciate your patience.
Take care and best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Really quick response to my query…
Really quick response to my query ensuing in my being able to access PKB system.
15. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Thank you for your positive feedback, Judy! 🌟 We're thrilled to hear that you you now have access to your record. If you ever need further assistance, please don't hesitate to reach out.
Unintelligable - Worse than no Information
Been getting text and emails saying that 'my record has been updated' but when I access the system the information presented is unintelligible, absolutely meaningless to the patient - in fact it is worse than no information at all because it hints that there are results but they are not going to tell you what they are.
The system is a disgrace - the fact that anyone thought that reporting critical information to patients in such a manner was acceptable is absolutely disgusting.
Disgraceful service, they should hang their heads in shame.
11. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Nigel,
Thank you for sharing your concerns. We're very sorry to hear about your experience and any confusion caused by the email notification.
When your hospital updates your record, you will receive an email detailing the changes, such as new appointments or documents. Recent changes will also appear in the notifications panel on your homepage.
If your hospital has "updated your profile," this refers to changes in your demographic information (e.g., name, address). The email link will direct you to the settings page where these details are stored. Some of these updates may be minor.
If you’d like us to address your issues further, please reach out to us at help@patientsknowbest.com.
Treated like I was the only one
Treated like I was the only one, 10 star treatment, couldn't have been better, Masters of Knowledge, Angels abound.
7. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Thank you for your positive feedback, George! 🌟 If you ever need further assistance, please don't hesitate to reach out.
It is useful to be able to go in and…
It is useful to be able to go in and check my blood test results. But not all my clinics in different hospitals use this particular portal. And even in hospitals that do use it, not all departments use it to share results the heart scans. Plus I keep getting messages that something has chzz as need in my record but when I log in, it isn’t at all clear what. So I have to check everywhere to see if I can spot a change. In all, should make life a lot easier but is so variable it doesn’t.
PKB's response was simple to confirm that I will get notified if ANYTHING however minor changes, but not what - and ignored totally my suggestion of how this could be improved.
4. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Sorry to hear this Rachel. We want every patient to access a copy of their health record, and we understand how disappointing it must be to not have access to everything.
Unfortunately, at the moment it is not possible to get your entire health record within PKB. We are working with many healthcare providers to give you access to your medical records however not all of them currently use PKB and not all wish to provide patients with all their medical records.
The good news is that we are ever-expanding and more NHS trusts are coming on board all the time, so please do keep an eye on our blog for the latest updates.
With regards to your updates, you'll receive email notifications whenever your hospital updates your record, indicating changes like new appointments or documents. Recent changes will also appear in the notifications panel on your homepage.
If your hospital have 'updated your profile, this refers to demographic information (e.g., name, address). The email link will direct you to the profile page where these details are stored. Some of these updates can be quite minor.
You can not access the information when you need it most. more importantly you can't rectify wrong information held about you which is life threatening.
Having been fobbed off with sore throat treatment, I have spent several days in hospital with recurring anaphylactic reactions to something with the potential to kill me.. how can my life be held to ransom by an app and a receptionist, whilst I am great full for A&E keeping me alive what has this country become when life threatening false information cannot be changed.. thank you for your reply putting me back to the NHS. This is the main problem. When you have a 15 min life threatening illness the last thing you need is two organisations passing the the blame to each other. Whilst in hospital not one person from nurse to IT specialist could access the app. .. when still under a 15 min life expectancy from an unknown trigger the receptionist spent 10 minutes trying to tell me it's mine or your fault the app cannot be accessed before changing something that allowed limited access. I still can not access the urgent information post sent to me via the app. Again I ask how can it be that some peoples lives can be held to ransom by an app. Simply put..the message sent to me by your app cannot be received via you app.
3. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi John, your feedback has come through to the software company Patients Know Best, not to your hospital. We can appreciate how frustrating your situation is. However, please note that we handle technical matters related to the portal and not issues concerning patient care. It would be best to direct your feedback to your hospital so they can assist you further.
Unnecessary stress. Delayed results can be better communicated.
It works, but for certain sensitive blood tests like HIV where the patient has to wait 30-days with random ascension numbers displayed can cause unnecessary uncertainty and stress, especially when all other test results show up.
Got sensitive blood test results after 1 month of anxiously waiting. All other blood tests were displayed on PKB within 24-48hrs so that's good.
The system lacks language and indicators that better explain the delayed results to ease patients. Having the delay and multiple ascension numbers can be easily misinterpreted by a patient especially if they do a quick Google search. Delayed reporting is often associated with something a doctor needs to explain to a patient directly.
The PKB team should discuss internally on how to best present the delayed test result notifications. Other negative reviews also express similar dissatisfaction on this issue.
2. juli 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Ivy, we're very sorry for any distress caused with the delay added to your test result. Some hospitals choose to place a delay on test types that are considered sensitive or diagnostic. If applied, all results for the test type will be subject to the delay, it doesn't indicate that there's anything to be concerned about with your individual results. This is to allow clinicians time to meet with patients directly, if necessary, to discuss the results.
We have passed on your feedback to our product team.
If you have any more feedback or suggestions, please don't hesitate to reach out to our support team at 📧: help@patientsknowbest.come
App is brilliant so why am I not giving…
App is brilliant so why am I not giving it 5 stars? Did a test the other day and usually the result comes up but today:
The results will be available on 25 July 2024 at 16:01
Now as someone who suffers with health anxiety, this is appalling. It may be the lab asking for it but PKB should not allow it! I am now worrying I potentially have a serious disease when it may be nothing?! What a brilliant app, let down by something so silly. If it is negative then I understand a comment but putting a date a month away with no note is not great. Shame as the way it shows bloods history etc. is outstanding.
27. juni 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Sean, thank you for your feedback.
We're very sorry for any distress caused with the delay to your recent test result. Some hospitals choose to place a delay on test types that are considered sensitive or diagnostic. If applied, all results for the test type will be subject to the delay, it doesn't indicate that there's anything to be concerned about with your individual results. This is to allow clinicians time to meet with patients directly, if necessary, to discuss the results.
I hope this helps to reassure you, but if you'd like further support, please get in touch with our support team. If you have any concerns about your results, please contact your GP or clinical team.
This is a rubbish service I have been…
This is a rubbish service I have been waiting 10 days for my blood results and if/ when I get them they don’t report on all the bloods. Patient view was so much better - Oxford have a great system as well much more reliable and informative.
27. juni 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Jon, I see that you've been in contact with our agent, Tarra, regarding this issue. As she mentioned, PKB displays results as soon as we receive them from your healthcare provider. Currently, there appears to be a delay on their end, which is currently under investigation.
Thank you for your patience as we work to resolve this with your healthcare provider.
3 Stars as improving but could do better
3 Stars as Patients Knows Best has improved but could still work and load better.
Main improvements are felt in the desktop version, but mobile access does not work as well.
Both are still a bit of a faff in comparison to the predecessor PatientView but at least a move in the right direction especially with the relatively recent improvements to the Test Results screen.
26. juni 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Thank you for your feedback.
We continuously strive to improve our platform to ensure it's both informative and user-friendly. Your feedback is invaluable in this process, and I will pass your concerns along to our product team.
If you need further assistance or have any more feedback or suggestions, please don't hesitate to reach out to our support team at 📧: help@patientsknowbest.com
Complete waste of time
Complete waste of time. No useful info on there at all that you can't find on the NHS App. Protracted setup but even worse NO clear way to remove it. As far as I can see you have to contact them (somehow) and then hopefully they'll do it for you. And there was I thinking this was the 21st century! 🙄
21. juni 2024
Uopfordret anmeldelse
Besvarelse fra Patients Know Best
Hi Arthur. We're very sorry to hear about your experience. Patients Know Best is a personal health record platform. Your hospital(s) decide which data to share with you in PKB. Many NHS Trusts are using our platform to share test results, appointments and much more with patients, others are taking a more phased approach.
Integrating your PKB record with your NHS app allows you to access your hospital data and GP data in the same place. I can see that you spoke with our Agent Tarra who has assisted in your query further.
Dette er Trustpilot
Alle kan skrive en anmeldelse på Trustpilot. En anmeldelse er ejet af personen, som har skrevet den, og vedkommende kan derfor redigere eller slette den til enhver tid. En brugers anmeldelser bliver vist, så længe vedkommendes konto er aktiv.
Virksomheder kan bede deres kunder skrive en anmeldelse ved hjælp af automatiske invitationer. Denne type anmeldelser handler om reelle oplevelser og markeres "Verificeret".
Læs mere om andre typer anmeldelser.
Vi bruger en kombination af dedikerede medarbejdere og avanceret teknologi til at beskytte vores platform. Find ud af, hvordan vi bekæmper falske anmeldelser.
Læs om anmeldelsesprocessen på Trustpilot.
Hér finder du 8 tips til at skrive anmeldelser.
Verificering kan være med til at sikre, at det er rigtige mennesker, der skriver de anmeldelser, du læser på Trustpilot.
Det kan påvirke TrustScoren, når man tilbyder incitamenter i bytte for anmeldelser, eller når man kun spørger bestemte kunder, og det er imod vores retningslinjer.